lionesa's Cancer Blog
December 3, 2008
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I’m writing this blog for myself, my family and for all the wonderful friends that are out there that are going through the same things.
Sometime in September, my mom (Joni) was diagnosed with a Level 4 GBM that was 4.6 X 4.7 cm and was inoperable. She didn’t tell any of us about it (except her male friend who is a genuine piece of crap). He checked her into the hospital to have a biopsy done without telling any of the family. My mom has never been the same! If they knew from the MRI the situation, why did they still need to go in and do a biopsy. Nonetheless, the man she was with checked her in and told them he was her husband and her next of kin. After the biopsy, my mom had lost the complete use of her left side and she was hallucinating. Still..no call from the man. We kept calling and calling..and he would tell us she was out shopping. Finally she kept asking for me and they didn’t know who I was..AND..after I told the man I was coming over to check on my mom, he finally called from the hospital in CCU and said I’d better get down there. Its been hell since..legally and otherwise.
My mom has since went through the first dose (3 weeks daily, orally)of chemo and radiation at the same time. On top of all of this, we found out that she has blood clots in her lungs and her legs. Since she had swelling on the brain, they couldn’t give her any blood thinners. They ended up putting in a filter in her neck to basically keep the clots out. Shes been in and out of the hospital due to her sodium levels dropping and then soooooo many infections due to no immune system. She’s had thrush, tremors, yeast infections, blood infections, stool infection and it just kills me to watch her slowly waste away. Right now, she is not eating very much and the Dr. has put her on hospice. The doctor has said that any nutrition she would get in food is being stolen by the tumor. It needs nutrients to continue to grow. They’ve also put her on methadone which is a slow, time release of morphine. Most of the time, she’s sleeping. Rarely do I get to have conversations with her anymore. I miss my mom and I really have come to hate the man that was in her life. In my opinion, after everything thats passed, I believe that he knew something was wrong due to sooooooo many things that we’ve seen.
I’m going to continue to write but for right now, I’m going to go and visit my mom and read Uncle Wiggley.
Starting from the beginning, 
1 comment)
Thanks for your support -
Dear Joni; It is with sadness I came to look at the new posts to find yours. But we are glad you came to us, and hope that you will find some friends here who will help you through the ordeal that you face. It is pretty shocking to hear of a man that kept you from your Mom and her failing health issues. Do you have other siblings? I can see that you are dealing with someone who might have not wanted to accept that your Mom was as sick as she was, or maybe he is just so possessive that he only wanted himself to be in the control of her. Either way, she is not going to be very helpful to his ego in her weakened state, so that just might put a stop to his behaviours. I hope you have friends and family to help you out with your Mom. I hope that she will gain some strength for you to have your chats. Sometimes the news of cancer comes too quickly and moves too fast for any of us to really understand fully what is happening. YOu seem to have a grasp on explaining her situation, and that helps me understand that you must be a strong person, even though you don’t feel so.
Welcome to our club here. YOu will find it most interesting. Keep us posted.
Weezie